AAF National Resource Directory

National Diabetes Organizations

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK)
Internet: http://www.niddk.nih.gov
The National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK) is the Government's lead agency for diabetes research. The NIDDK operates three information clearinghouses of potential interest to people seeking diabetes information and funds six Diabetes Research and Training Centers and eight Diabetes Endocrinology Research Centers.

National Diabetes Information Clearinghouse (NDIC)
1 Information Way
Bethesda, MD 20892-3560
Phone: 1-800-860-8747 or (301) 654-3327
Fax: (301) 907-8906
Email: ndic@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov/health/diabetes/diabetes.htm
The NDIC serves as a diabetes information, educational, and referral resource for health professionals and the public. NDIC is a service of the NIDDK. Diabetes education materials are available free or at little cost. Literature searches on myriad subjects related to diabetes are provided. NDIC publishes Diabetes Dateline, a semiannual newsletter.

National Kidney and Urologic Diseases Information Clearinghouse (NKUDIC)
3 Information Way
Bethesda, MD 20892-3580
Phone: 1-800-891-5390 or (301) 654-4415
Fax: (301) 907-8906
Email: nkudic@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov/health/kidney/kidney.htm
The NKUDIC provides information about kidney and urologic diseases to the public, patients and their families, and health care professionals. NKUDIC also works with related organizations to educate people about kidney and urologic diseases, answers inquiries, and develops and distributes publications. NKUDIC is a service of the NIDDK. Education materials, including the fact sheet Kidney Disease of Diabetes and the booklet Kidney Failure: Choosing a Treatment That's Right for You; literature searches on a number of topics related to kidney and urologic diseases; and Research Updates in Kidney and Urologic Health, a semiannual newsletter.

Weight-control Information Network (WIN)
1 WIN Way
Bethesda, MD 20892-3665
Phone: 1-877-946-4627 or (202) 828-1025
Fax: (202) 828-1028
Email: win@info.niddk.nih.gov
Internet: http://www.niddk.nih.gov/health/nutrit/win.htm
The WIN addresses the health information needs of individuals through the production and dissemination of educational materials. In addition, WIN is developing communication strategies for a pilot program to encourage at-risk individuals to achieve and maintain a healthy weight by making changes in their lifestyle. Fact sheets, pamphlets, reprints, consensus statements, reports, and literature searches on weight control, obesity, and weight-related nutritional disorders. WIN's semiannual newsletter, WIN Notes, provides health professionals with the latest research findings and progress in the WIN program.

Diabetes Research and Training Centers (DRTCs)
Diabetes Endocrinology Research Centers (DERCs)
The NIDDK supports two types of centers to foster diabetes research: Diabetes Research and Training Centers and Diabetes Endocrinology Research Centers. These centers facilitate progress in research by providing shared resources to enhance the efficiency of biomedical research and foster collaborations within and among institutions with established, comprehensive bases of research relevant to diabetes mellitus. They focus on basic and clinical research. In addition, the DRTCs provide substantial support for cores and pilot and feasibility projects directed at prevention and control of diabetes and translation of research advances into clinical practice. Individual centers produce a variety of diabetes education materials. For information about publications and programs, contact the individual centers listed below.

Albert Einstein College of Medicine DRTC
Elizabeth A. Walker, D.N.Sc., R.N.
Associate Professor of Medicine
701 Belfer Building
Albert Einstein College of Medicine
1300 Morris Park Avenue
Bronx, NY 10461
Phone: (718) 430-2908
Fax: (718) 430-8557
Email: walker@aecom.yu.edu

University of Chicago DRTC
Donald Steiner, M.D.
Howard Hughes Medical Institute
University of Chicago
5841 South Maryland Avenue, MC 1028
Room N-216
Chicago, IL 60637
Phone: (773) 702-1334
Fax: (773) 702-4292
Email: dfsteine@midway.uchicago.edu

Indiana University DRTC
David G. Marrero, Ph.D.
Indiana University School of Medicine
The National Institute for Fitness and Sport
Room 122
250 North University Boulevard
Indianapolis, IN 46202
Phone: (317) 278-0905
Fax: (317) 278-0911
Email: DMARREO@mdep.iupui.edu

University of Michigan DRTC
Roland G. Hiss, M.D.
Michigan Diabetes Research and Training Center
G1103 Towsley Center, Box 0201
University of Michigan Medical School
Ann Arbor, MI 48109-0201
Phone: (313) 763-1426
Fax: (313) 936-1641
Email: mfunnell@medmail.med.umich.edu
Internet: http://www.med.umich.edu/mdrtc

Vanderbilt University DRTC
Stephen N. Davis, M.D.
Rudolph H. Kampmeier Professor of Medicine
Director, Prevention/Control and Clinical Research Component
715 PRB
Vanderbilt University Medical Center
Nashville, TN 37232-6303
Phone: (615) 936-1653
Fax: (615) 936-1667
Email: Steve.Davis@mcmail.vanderbilt.edu

David G. Schlundt, Ph.D.
Associate Professor of Psychology
Vanderbilt Diabetes Center
315 Medical Arts Building
1211 21st Avenue South
Nashville, TN 37212
Phone: (615) 936-1149
Fax: (615) 936-1152
Email: David.Schlundt@vanderbilt.edu

James W. Pichert, Ph.D.
Associate Professor of Education in Medicine
Vanderbilt Diabetes Center
315 Medical Arts Building
1211 21st Avenue South
Nashville, TN 37212
Phone: (615) 936-1149
Fax: (615) 936-1152
Email: Jim.Pichert@mcmail.vanderbilt.edu

Washington University DRTC
Edwin Fisher, Ph.D.
Professor of Psychology, Medicine, and Pediatrics
Division of Health Behavior Research
Washington University
4444 Forest Park Avenue
St. Louis, MO 63108
Phone: (314) 286-1900
Fax: (314) 286-1919
Email: efisher@im.wustl.edu

Joslin Diabetes Center DERC
C. Ronald Kahn, M.D.
One Joslin Place
Boston, MA 02215
Phone: (617) 732-2635
Fax: (617) 732-2487
Email: c.ronald.kahn@joslin.harvard.edu
Internet: http://www.joslin.harvard.edu

Massachusetts General Hospital DERC
Joseph Avruch, M.D.
Diabetes Unit
Department of Molecular Biology
Wellman 8
50 Blossom Street
Boston, MA 02114
Phone: (617) 726-6909
Fax: (617) 726-6909
Email: avruch@helix.mgh.harvard.edu

University of Colorado DERC
John Hutton, Ph.D.
Barbara Davis Center for Childhood Diabetes
4200 East 9th Avenue
Box B-140
Denver, CO 80262
Phone: (303) 315-8796
Fax: (303) 315-4892
Email: john.hutton@uchsc.edu
Internet: http://www.uchsc.edu/misc/diabetes/bdc.html

University of Iowa DERC
Robert Bar, M.D.
Department of Internal Medicine
3-E 19 VA Medical Center
Iowa City, IA 52246
Phone: (319) 338-0581, ext. 7625
Fax: (319) 339-7025
Email: rbar@icva.org
Internet: uiderc.icva.gov

University of Massachusetts Medical School DERC
Aldo Rossini, M.D.
373 Plantation Street, Suite 218
Worcester, MA 01605
Phone: (508) 856-3800
Fax: (508) 856-4093
Email: Aldo.Rossini@umassmed.edu
Internet: http://www.umassmed.edu/diabetes

University of Pennsylvania DERC
Mitchell Lazar, M.D.
Division of Endocrinology, Diabetes and Metabolism
611 Clinical Research Building
415 Curie Boulevard
Philadelphia, PA 19104-6149
Phone: (215) 898-0198
Fax: (215) 898-5408
Email: lazar@mail.med.upenn.edu
Internet: http://www.uphs.upenn.edu/pdc

University of Washington DERC
Jerry P. Palmer, M.D.
Box 358285
DVA Puget Sound Health Care System
1660 S. Columbian Way
Seattle, WA 98108
Phone: (206) 764-2688
Fax: (206) 764-2693
Email: jpp@u.washington.edu
Internet: depts.washington.edu/diabetes/index.html

Yale University School of Medicine DERC
Robert Sherwin, M.D.
Box 208020
333 Cedar Street, Fitikin 1
Section of Endocrinology
New Haven, CT 06520-8020
Phone: (203) 785-4183
Fax: (203) 737-5558
Email: robert.sherwin@yale.edu
Internet: info.med.yale.edu/intmed/endocrin/research_prog.html

National Eye Institute (NEI)
National Eye Health Education Program (NEHEP)
Box 20/20
Bethesda, MD 20892-3655
Phone: 1-800-869-2020 (for health professionals only) or (301) 496-5248
Fax: (301) 402-1065
Email: 2020@nei.nih.gov
Internet: http://www.nei.nih.gov
The NEI promotes public and professional awareness of the importance of early diagnosis and treatment of diabetic eye disease. NEHEP is a partnership with various public and private organizations that plan and implement eye health education programs targeted to a variety of high-risk audiences. NEI produces patient and professional education materials related to diabetic eye disease and its treatment, including literature for patients, guides for health professionals, and education kits for community health workers and pharmacists. The following titles focus on diabetic eye disease: Educating People with Diabetes (kit), Information Kit for Pharmacists, and Ojo con su Visión (Watch Out for Your Vision) (in Spanish).

National Heart, Lung, and Blood Institute (NHLBI) Information Center
P.O. Box 30105
Bethesda, MD 20824-0105
Phone: (301) 592-8573
Fax: (301) 592-8563
Email: NHLBIinfo@rover.nhlbi.nih.gov
Internet: http://www.nhlbi.nih.gov/health/infoctr
The NHLBI provides information and respond to inquiries related to the prevention and treatment of heart, lung, blood, and sleep disorders. Patient education and professional materials are available on numerous topics, including cholesterol, high blood pressure, asthma, blood disease, heart disease, heart attack, exercise, obesity, lung disease, and sleep disorders. Treatment guidelines for health professionals are available on cholesterol, high blood pressure, obesity, and asthma. Serial publications include Heart Memo, which provides program updates about cholesterol, high blood pressure, and heart attack, and Asthma Memo, which describes the activities of the National Asthma Education and Prevention Program.

National Oral Health Information Clearinghouse (NOHIC)
1 NOHIC Way
Bethesda, MD 20892-3500
Phone: (301) 402-7364
Fax: (301) 907-8830
Email: nohic@nidcr.nih.gov
Internet: http://www.nohic.nidcr.nih.gov
The NOHIC serves as a resource for patients, health professionals, and the public who seek information on the oral health of special care patients: people with genetic or systemic disorders that compromise oral health, people whose medical treatment causes oral problems, and people with mental or physical disabilities that make dental hygiene difficult. A service of the National Institute of Dental and Craniofacial Research, NOHIC gathers and disseminates information from many sources, including voluntary health organizations, educational institutions, Government agencies, and industry. NOHIC provides a variety of services to help patients and professionals obtain information including patient education materials and literature searches. OH Notes is NOHIC's newsletter, which is published annually.

Centers for Disease Control and Prevention (CDC)
National Center for Chronic Disease Prevention and Health Promotion
Division of Diabetes Translation
Mail Stop K-10
4770 Buford Highway, NE.
Atlanta, GA 30341-3717
Phone: 1-877-CDC-DIAB
Fax: (301) 562-1050
Email: diabetes@cdc.gov
Internet: http://www.cdc.gov/diabetes
(home page includes fact sheets, statistics, publications, and information about state diabetes control programs)
The CDC reduces the burden of diabetes in the United States by planning, conducting, coordinating, and evaluating Federal efforts to translate promising results of diabetes research into widespread clinical and public health practice. CDC distributes several publications including a patient guide for people with diabetes (available in English and Spanish), a diabetes surveillance report, and the eight-page National Diabetes Fact Sheet: National Estimates and General Information on Diabetes in the United States. State-based diabetes control programs develop and maintain local programs and produce materials on diabetes for the general public and health professionals.

Indian Health Service (IHS)
Indian Health Service National Diabetes Program
5300 Homestead Road, NE.
Albuquerque, NM 87110
Phone: (505) 248-4182 or (505) 248-4236
Fax: (505) 248-4188
Email: diabetesprogram@mail.ihs.gov
The IHS develops, documents, and sustains a health effort to prevent and control diabetes in American Indian and Alaska Native communities. IHS makes many diabetes resources available, including the Diabetes Curriculum Packet, nutrition education materials, general diabetes information, professional resources, training programs, posters, audiovisual materials, and other patient education materials. Educational materials are directed toward American Indian and Alaska Native populations, and some materials are available at a lower reading level. Materials can be obtained upon request from the IHS National Diabetes Office.

Office of Minority Health Resource Center (OMH-RC)
P.O. Box 37337
Washington, DC 20013-7337
Phone: 1-800-444-6472
Fax: (301) 230-7198
The OMH-RC improves the health of racial and ethnic populations through the development of health policies and programs. OMH-RC is the largest resource and referral service on minority health in the Nation.
OMH-RC offers information, publications, mailing lists, database searches, referrals, and more for African-American, Asian, Hispanic/Latino, American Indian/Alaska Native, and Pacific Islander populations. OMH-RC publishes the newsletters Closing the Gap and HIV Impact.

Department of Veterans Affairs
Veterans Health Administration (VHA)
Program Chief, Diabetes
Veterans Health Affairs
810 Vermont Avenue, NW.
Washington, DC 20420
Phone: (202) 273-8490
Fax: (202) 273-9142
The VHA decreases the prevalence of adverse health outcomes in veterans with diabetes by ensuring that each patient at each facility has access to preventive and treatment programs that meet national standards of care. The VHA Diabetes Clinical Practice Guidelines is a comprehensive, evidence-based document that incorporates information from several existing, national consensus, evidence-based guidelines into a format that maximally facilitates clinical decisionmaking. An algorithmic format was chosen because of evidence that such a format improves data collection and diagnostic and therapeutics decisionmaking and changes patterns of resource use. Guidelines were developed in six major subject areas, including glycemic control, foot care, eye care, hypertension, lipids, and renal disease. A computer version of the algorithm is under discussion.

Professional and Voluntary Associations
American Association of Clinical Endocrinologists (AACE)
1000 Riverside Avenue, Suite 205
Jacksonville, FL 32304
Phone: (904) 353-7878
Fax: (904) 353-8185
Internet: http://www.aace.com
The AACE provides an avenue for the study of the scientific, social, political, and economic aspects of endocrinology consistent with maintaining the highest levels of patient care and the highest standards of medical practice. AACE is an international organization representing physicians devoted to enhancing the field of clinical endocrinology. AACE publishes a peer-reviewed scientific journal, Endocrine Practice. The organization also publishes The First Messenger newsletter and other timely publications, such as practice guidelines, to keep members abreast of scientific developments and news.

American Association of Diabetes Educators (AADE)
100 West Monroe, 4th floor
Chicago, IL 60603
Phone: (312) 424-2426
Fax: (312) 424-2427
Diabetes Educator Access Line: 1-800-TEAMUP4 (1-800-832-6874)
Email: aade@aadenet.org
Internet: http://www.aadenet.org
The AADE advances the role of the diabetes educator and improve the quality of diabetes education and care. AADE publishes The Diabetes Educator, a bimonthly journal for multidisciplinary members of the diabetes health care team. The journal publishes the latest diabetes education research along with valuable teaching tools and techniques. AADE also produces the most comprehensive diabetes education resource, A Core Curriculum for Diabetes Education, now in its third edition. AADE members receive AADE News, providing association-related news and practice information, nine times per year. Call AADE for a complete listing of all educational products, including publications, videotapes, and patient materials, available through the association.

American Diabetes Association (ADA)
National Service Center
1701 North Beauregard Street
Alexandria, VA 22311
Phone: 1-800-DIABETES (1-800-342-2383), (703) 549-1500 (National Service Center), or 1-800-232-3472 (professional member department only)
Fax: (703) 549-6995
Email: askada@diabetes.org
Internet: http://www.diabetes.org
The ADA aims to prevent and cure diabetes and to improve the lives of everyone affected by diabetes. The American Diabetes Association publishes many books and resources for health professionals and people with diabetes. In addition, it publishes Diabetes Forecast, a monthly magazine for people with diabetes, and Diabetes, Diabetes Care, and Diabetes Spectrum, which are professional journals. For further details and ordering information on ADA's publications, contact the American Diabetes Association, Order Fulfillment Dept., P.O. Box 930850, Atlanta, GA 31193-0850, 1-800-232-6733; or see http://www.diabetes.org/Publications on the Internet.

American Dietetic Association (ADA)
216 West Jackson Boulevard
Chicago, IL 60606-6995
Phone: (312) 899-0040
Fax: 1-800-899-1976
Internet: http://www.eatright.org
The ADA promotes optimal nutrition and well-being for all people by advocating for its members. The American Dietetic Association publishes a monthly professional journal, The Journal of the American Dietetic Association, and a monthly newsletter, ADA Courier. In addition, it publishes many books and other resources for consumers and professionals.

Consumer Nutrition Hotline
(part of the American Dietetic Association)
Phone: 1-800-366-1655
Internet: http://www.eatright.org
A toll-free consumer nutrition hotline that provides a referral service to registered dietitians.

American Foundation for Urologic Disease Inc. (AFUD)
1128 North Charles Street
Baltimore, MD 21201
Phone: 1-800-242-2383 or (410) 468-1800
Email: admin@afud.org
Internet: http://www.afud.org
The AFUD provides research grants, patient and public education, Government relations, and patient support group activities. AFUD publishes an informational brochure about the organization; Family Urology, a quarterly newsletter; and several patient education brochures.

American Podiatric Medical Association (APMA)
9312 Old Georgetown Road
Bethesda, MD 20814-1698
Phone: (301) 571-9200
Fax: (301) 530-2752
Email: askapma@apma.org
Internet: http://www.apma.org
APMA Foot Care Information Center
Phone: 1-800-FOOT-CARE (1-800-366-8227)
The APMA serves the professional needs and promote the standards and ethics of doctors of podiatric medicine and their services to the public. APMA publishes a monthly magazine, APMA News; a monthly journal, Journal of the American Podiatric Medical Association; and a diabetes-specific booklet, Your Podiatric Physician Talks About Diabetes, along with many other brochures on various foot health topics.

Diabetes Action Research and Education Foundation
426 C Street, NE.
Washington, DC 20002
Phone: (202) 333-4520
Email: daref@diabetesaction.org
Internet: http://www.diabetesaction.org
The foundation supports and promotes education and scientific research to enhance the quality of life for everyone affected by diabetes. The foundation publishes the booklet Managing Your Diabetes: Basics and Beyond.

Diabetes Exercise and Sports Association (DESA)
1647 West Bethany Home Road, #B
Phoenix, AZ 85015
Phone: 1-800-898-4322
Fax: (602) 433-9331
Email: desa@diabetes-exercise.org
Internet: http://www.diabetes-exercise.org
The DESA aims to enhance the quality of life for people with diabetes through exercise. The Challenge is DESA's quarterly newsletter. DESA also provides pamphlets on diabetes and exercise.

Endocrine Society
4350 East West Highway, Suite 500
Bethesda, MD 20814-4410
Phone: (301) 941-0200
Fax: (301) 941-0259
Email: endostaff@endo-society.org
Internet: http://www.endo-society.org
The Endocrine Society aims to promote excellence in research, education, and the clinical practice of endocrinology; foster a greater understanding of endocrinology among the general public and practitioners of complementary medical disciplines; and promote the interests of all endocrinologists at the national scientific research and health policy levels of Government. The Endocrine Society publishes four professional journals: Endocrinology, The Journal of Clinical Endocrinology and Metabolism, Endocrine Reviews, and Molecular Endocrinology. Another publication, The Clinical Endocrinology Update Syllabus, provides practicing endocrinologists with a review of the diagnosis and management of all major components of contemporary endocrinology.

Juvenile Diabetes Research Foundation International (JDRF)
120 Wall Street, 19th floor
New York, NY 10005-4001
Phone: 1-800-533-2873 or (212) 785-9500
Fax: (212) 785-9595
Email: info@jdf.org
Internet: http://www.jdf.org
The JDRF supports and funds research to find a cure for diabetes and its complications. The Juvenile Diabetes Research Foundation International is a nonprofit, voluntary health agency, and the world's leading funder of research to find a cure for diabetes. JDRF publishes the quarterly magazines Countdown and Countdown for Kids, as well as a series of patient education brochures about type 1 and type 2 diabetes and a research e-newsletter, published twice a month, to provide the latest information about research on type 1 diabetes and its complications.

National Certification Board for Diabetes Educators (NCBDE)
330 East Algonquin Road, Suite #4
Arlington Heights, IL 60005
Phone: (847) 228-9795
Fax: (847) 228-8469
Phone requests for exam applications: (913) 541-0400
Email: info@ncbde.org
Internet: http://www.ncbde.org
The NCBDE aims to promote excellence in the field of diabetes education through the development, maintenance, and protection of the Certified Diabetes Educator (CDE) credential and the certification process. NCBDE publishes a brochure that contains information about eligibility requirements and the certification examination.

National Glycohemoglobin Standardization Program (NGSP)
Randie R. Little, Ph.D., Network Coordinator
Department of Child Health, M772
University of Missouri School of Medicine
1 Hospital Drive
Columbia, MO 65212
Phone: (573) 882-1257
Fax: (573) 884-4748
Email: diabetes@showme.missouri.edu
Internet: http://www.missouri.edu/~diabetes/ngsp.html
The NGSP aims to standardize glycohemoglobin test results so that clinical laboratory results are comparable to those reported in the Diabetes Control and Complications Trial (DCCT), where relationships to mean blood glucose and risk for vascular complications have been established.

National Kidney Foundation, Inc. (NKF)
30 East 33rd Street
New York, NY 10016
Phone: 1-800-622-9010 or (212) 889-2210
Fax: (212) 689-9261 or (212) 779-0068
Email: info@kidney.org
Internet: http://www.kidney.org
The NKF aims to prevent kidney and urinary tract diseases, improve the health and well-being of individuals and families affected by these diseases, and increase the availability of all organs for transplantation. Through its 51 affiliates nationwide, NKF conducts programs in research, professional education, patient and community services, public education, and donation. The work of NKF, a major voluntary health organization, is funded primarily by public donations. NKF has several publications including American Journal of Kidney Diseases, Journal of Renal Nutrition, Advances in Renal Replacement Therapy, Journal of Nephrology Social Work, Renalink, NKF MD, NKF Family Focus, Transplant Chronicles, and For Those Who Give and Grieve. Additional patient and public education materials are also available.

Pedorthic Footwear Association (PFA)
7150 Columbia Gateway Drive, Suite G
Columbia, MD 21046-1151
Phone: (410) 381-7278 or 1-800-673-8447
Fax: (410) 381-1167
Internet: http://www.pedorthics.org
The PFA aims to increase knowledge and understanding of pedorthics and its practice, encourage development of new pedorthic tools and techniques, and foster the professional development of pedorthic practitioners. PFA publishes the bimonthly magazine Current Pedorthics, formerly called Pedoscope; the brochures Pedorthics: Foot Care Through Proper Footwear and Diabetes & Pedorthics: Conservative Foot Care; reference guides; and manuals.